Katie

This year we learned about Stevens–Johnson syndrome (SJS) and toxic epidermal necrolysis (TEN).  Very scary.  Our niece Katie is 16 years old, and was life-flighted from St. George, Utah to the burn center at the University of Utah hospital in Salt Lake City. 

Stevens–Johnson syndrome (SJS) and toxic epidermal necrolysis (TEN) are two forms of a life-threatening skin condition, in which cell death causes the epidermis to separate from the dermis. The syndrome is thought to be a hypersensitivity complex that affects the skin and the mucous membranes.  The mortality for toxic epidermal necrolysis (TEN) is 30–40 percent.

Katie had a severe case, and lost skin all over the inside and outside of her body.  She was on breathing tubes and several other tubes for an extended period of time.  She had multiple surgeries and had skin graphs that affected most of her body.  She was in a lot of pain and in a lot of prayers.  Her recovery has been a miracle.  After about two months in intensive care, she is now back in St. George, in the hospital there. 

I can't  believe that this is the burden their family has been asked to bear, but I am amazed by their faith.  I am so grateful for the body that I have, the health I enjoy, and the amazing example of dedication and perseverance by Katie and her family.